24 Apr 2022 Community

Shabana’s Story

“Before I accessed The Kirkwood’s support I was scared just hearing the name. I hadn’t shared details of my condition with my friends or family because I didn’t just want their sympathy. I have a condition which isn’t going to get better, and as a single mum I have had a lot of anxiety about the future.  

“I have been supported by the Care Co-ordination team who have helped me access equipment, specialist care, organise adaptations to my home and give advice on benefits. I’ve been able to contact them on my own terms, whenever I have needed support and the fact there is no time limit means I have been reassured that the support is there for me as long as I need it.  

“Being able to talk to someone who understands my cultural values, and is able to relate to my experiences means that I’m comfortable asking for help. Someone knowing your ups and downs and being able to give you advice to improve your day to day life has been fantastic.  

“When you are going through a difficult time you need someone who stands alongside you, with support and encouragement. It’s so reassuring to know that whenever I have had a problem I’ve not known how to handle, I’ve been able to call someone who can talk through and make me feel like I am not alone. Many people from our community think that asking for help is a weakness but if there is support out there to manage your health we should take it.  

“I want to make sure people know that no matter their background, The Kirkwood are here for you. It’s not just for those with cancer, they are here for people with so many conditions; illnesses such as dementia, heart failure and COPD, and for people who are caring for someone with these conditions.  

“Thinking back, I had a completely different idea of The Kirkwood. These misconceptions meant I was scared to accept help.  

“Thank you to everyone from The Kirkwood for listening and offering guidance and support with such dedication – there are no words to adequately thank you.” 

Names have been changed for the purpose of anonymity.